Facing Tomorrow

Thank goodness for this garage sale! I've been a busy girl in preparation for the big sale, so it has been a great distraction!

Tomorrow is scan day. Not sure why I insist on getting all worked up as we probably won't even know the results until our appointment with the new doctor next Thursday. I'm assuming if anything is glaringly wrong, then we will be notified. I'm sure Matt will try and find a way to get the radiology report before then!

I'm still plugging my way through the book, "Finding Light in Cancer's Shadow." I came across a great thought while reading tonight. Author Lynn Eib is discussing the fear and paranoia that come with being a survivor, or in my case a mom of a survivor. She says, "You may not be able to completely cancel your membership to Club Paranoia, but you don't have to be a card-carrying member every day!" I love it! Although this week I feel like the president of that club, I know that in time, I will learn to live with these feelings and manage them better. She also reminded me that it is okay to be vigilant, and on top of things...it makes us smart, not paranoid! I think I have a foot in both of those camps though!

So, tomorrow we will leave here by 8am, PT at 9am, to Strong by 11:30am, scans at 12:30am, hopefully home in the late afternoon. I did hear from the NP today who got a call from radiology. You'll remember that Matt and I had several specific requests, one of which being that they just use MRI in order to limit Brady's radiation exposure. I guess the radiology department feels that at CT scan in addition to the MRI is warranted in order to get a good view of the chest. You'll remember that Sloan told us that an MRI would be fine. I guess we have some things to discuss with radiology tomorrow. Perhaps we will go with both scans this time since we are not that far "out of the woods" yet.

Please be praying:
-For Brady as he can't eat or drink until after the scans. He LOVES breakfast and it is so hard to watch him be hungry and not understand why we won't feed him
-For Brady's comfort. These are the first scans since his Broviac was taken out, so he will need to have an IV
-For wisdom and precision of nurses, anesthesiologists, radiologist working with Brady
-For peace and comfort for Matt and I as we keep Brady company and then wait...

We appreciate your love and support more than you know!

Giggles and Graham Crackers

It's 8am..Brady slept on and off all night until about 7:30. He talked during his sleep all night about "socks on!" No that he is awake he is sitting here with me just being hilarious. I LOVE this boy! Everytime he notices the tubes attached to his Broviac that are giving him fluids he says "Uh-oh..no no!" He is playing with all of the medical equipment left in the room from during the night. Right now he has a paper tape measure in his mouth and a graham cracker in his hand. I tell you, this child's silly side amazes me! No signs of nausea this morning. He was moaning throughout the night quite a bit, but I decided to stick by the choice not to give the Decadron. If we had, he wouldn't be this happy boy this morning.

The rounding doctor told me that CT and MRI will be scheduled for two weeks from now (both done under sedation). A follow up meeting about results will be 1-2 days after that. Neurosurgery is stopping by this morning to look at his back. Someone from physcial therapy is coming by as well to look at him. So, a busy morning here, wanted to share some sunshine with you all this morning!