Well friends...not so good news tonight. Brady spiked a fever before dinner. It was hovering between 102-103 for a quite a while even with Tylenol. We called the oncologist and she said we needed to head to the ER. It is possible that Brady is neutropenic, so any infection is a big deal. We are here in the ER...got in right away since Brady is a cancer patient. He had blood drawn and we are waiting for results. His face is really flushed as well so the doctor thinks it could possibly be a reaction to the anesthesia. We are probably going to be moved upstairs to a room (private of course) and will be here overnight most likely.
I'm want to let you all know some disappointing news about the CT/MRI results as well. It looks as though the tumor in Brady's chest has not changed. It hasn't gotten bigger, but more disappointingly hasn't shrunk either. There is less swelling in the spinal area and the cord isn't compressed, but that could have been as a result of surgery, not chemo. The doctor wasn't completely discourged though because since his HVA and VMA levels did drop, that means the amount of neuroblastoma cells are fewer. So, it is possible that although the tumor didn't shrink, it could have "changed." Sometimes NB tumors will mature with chemo, which means they become benign, but don't shrink. There is no way to know if this is the case until we can get in there and biospy it. All the more reason that we need to get to Sloan. Our oncologist is emailing them yet again tomorrow, along with new scans.
I talked with God the whole way here. I told him of my disappointment, my broken heart. I told him how hard it is for us to leave our three healthy, happy children home living their normal life. I shared with him my anger that this cancer is still in my sweet Brady. I'm trusting him to give me that hope again that has sustained me for the last 1 1/2 months.
Please be praying:
For Brady's sweet spirit to continue being a blessing to all of us. He is amazing!
For the doctor's at Sloan to respond to us ASAP and make Brady a priority even though he isn't a Stage IV kid whom they deal with primarily.
For our parents and Eli, Cara, and Allie at home.
For God to heal my broken heart and restore my hope so that I can be strong for Brady.