Sunday, March 29, 2009

Family Time

We had a great night together with my brother and his family. Together with their two girls we had 6 kids under 2 1/2 in the!!! It's so sweet to see the way they love and play with each other. Times like this remind me that time with family is such a precious gift. We probably won't all be together for quite some time and that breaks my heart. Hopefully our next get-together will be a 2nd birthday party for the triplets :)

I have a ton of packing and organizing to do tomorrow. I have all of the insurance documents in order so I think we are all set. In two more nights I'll be writing to you all from Manhattan...

I continue to pray daily for Dr. Laquaglia the surgeon who will be operating on Brady. From everyone I have talked to he is a wonderfully humble man. He is able to operate on tumors that other doctors call inoperable and often do complete removals. He performs several of these surgeries a week, offering a chance at a cure for these children. I'm so thankful that God has opened the doors necessary to get us to Sloan and to Dr. Laquaglia. I'm actually looking forward to meeting him and hearing his plan.


  1. Thinking of you all, praying for you all.

  2. Family time is fabulous. Kids that age are so fun to watch.


  3. So glad you were able to spend some family time before your travels!!

    We will be praying for you this week as you guys travel to NYC!

  4. Hi Meg,

    I'm sorry I have not been here to support you the last few days. It seems there were some rather challenging ones. I was traveling Thursday through Sunday and will be traveling again Tuesday through Sunday of this week, but I will try hard to follow the blog, particularly since you have such a challenging week coming up.

    You are an amazing mom going through a serious, very difficult trial. You are doing a terrific job!! I'm so sorry you were feeling concerned about how you might be coming across, etc. I really believe that the people that follow this blog reguarly do not judge you at all and are in full support of whatever you feel is best for your son and your family. Only you and Matt can determine and know that that is. We understand that you are in a very tough spot, and you're doing the very best you can--which happens to be great! I'm certain it's MUCH better than I could ever do. :o) We LOVE YOU! I am thankful you are able to share the story of your journey. While being a mechanism for feeling support some days, I'm sure it is an additional challenge others and I really appreciate the significant effort you're making. That said, it if is ever too much, everyone would understand that, too. :o)

    I'm so glad you were able to spend some time with Andy and his Fam! I always find it such a blessing to see how young siblings and cousins interact and just love each other so much. :o)

    Best of luck as you prepare today. I will be praying, praying, praying this week. Good things are coming. Keep believing for them. :O)


  5. may the preperations begin...our prayers are with you as this new week holds so many things for you all. many, many prayers.

  6. Hi Megan..
    Came upon your site weeks ago..and read all about Brady. Know that I am praying for you and Brady as you travel. I am looking forward to coming back and watching Brady take many healthy steps.

    Love and Hugs.,

  7. Hi Matt and Megan,

    The picture of Brady is adorable 3/29. I will be thinking of you while you are in New York City. Our hopes and prayers will be with you all during this time. I know that God will be there. If you feel you need to seek Pastoral comfort I know a minister in Staten Island. We grew up in Oak Orchard Assembly. His name is Russell L Hodgins and he is senior pastor at the International Christian Center in Staten Island and he is a powerful man of God. I am sure that your own pastor has given you information for seeking guidance at this time, but the more who know, the more who pray. Take care and safe journey.

  8. Meg and Matt,
    Sending HUGE hugs and never ending prayers for your trip, and everyone involved in your stay and surgery.
    I am sure you will feel the warmth from your Prayer Warriors even though you are across the state.
    Peace be with you,
    Love, Deb R.

  9. I pray for Brady daily. I found the following on someone else's website, and thought you would appreciate it. "We also received a tentative date for Caitlin’s reversal surgery!! It was sooner than we thought it would be: February 25th. The wonderful Dr. LaQuaglia will be her surgeon. I have told some of you this story about him, but for the others out there, it is quite beautiful. It was Christmas Eve 2007 - a week since Caitlin’s diagnosis - and I couldn’t sleep. I met another insomniac mom, Carlina, in the hospital pantry in the wee hours of the morning, we exchanged stories, and she was able to tell me where the closest Catholic Church was so I could attend services. She also told me that she came to Sloan all the way from Texas with her 1-year-old child because of Dr. LaQuaglia, the chief pediatric surgeon. At the time, I had never heard of him (and obviously didn’t know how well I would get to know him when Caitlin required emergency surgery a couple of weeks later!) She told me that she often went to pray and saw Dr. LaQuaglia there early one morning with the priest after mass. She questioned the priest afterwards and he confirmed that it was indeed Dr. LaQuaglia and that he came each morning to get his hands blessed before going to work to perform surgery on the children. I caught my breath at the thought - how beautiful. As the weeks went by, Caitlin suddenly needed emergency surgery. It didn’t even dawn on me at the time that the man explaining all the risks to Mike & I was the same doctor. It wasn’t until after everything was over and we were thanking him profusely, that he raised his hands up and said ‘Hey, it’s not me’ and looked up to the heavens. Suddenly, the pieces connected and I exclaimed, ‘You’re the doctor that gets his hands blessed every morning, aren’t you?’ He just looked at me and one of the nurses said to him, ‘They’re on to you! They heard about you.’ Since then, I have heard time and time again about families who come specifically to Sloan so that Dr. LaQuaglia can be the surgeon who operates on their child. I was told of a family from Costa Rica (I think….) who didn’t speak much English, but could communicate that they were in NY for ‘God’s Surgeon’. Talk about pressure. But we can’t think of anyone else that we would want operating on Caitlin, can you?!?"


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