After all the hassle, all the phone calls...we are HERE! We arrived at 2pm and got to the Ronald House by 3pm. Brady did great on the airplane and fell asleep in the cab (too cute!) His first impression when we got out of the cab was to say "beep" in repsonse to all of the car horn's honking. He then quickly noticed all of the pigeons and people walking their dogs.
The Ronald House is on East 73rd between York and First Avenue. Our room is bare, but very livable. We had to go and get some basic necessities (paper towels, kleenex, antibacterial wipes) so we took a walk South towards Sloan. We had dinner at a little diner and then found a very well equipped pharmacy. We came back to the Ronald and played in their basement playroom which Brady enjoyed a lot! Right now I am sitting in the window area of our room looking up at the tall buildings rising all around us...quite a contrast from home!
Some EXCITING NEWS! In the last few days Brady has been enjoying standing on his own more and more. He will do it for 3-10 seconds at a time and then fall forward laughing. I have been encouraging him to try and take steps and just a few minutes ago he took two solid steps before falling! He insists on wearing bunny ears while doing this, but we'll take it! It really stinks that now we are headed into another surgery and I'm sure he will regress a little again. But, I'm so glad he is gaining confidence!
My frustration with getting times for our appointments tomorrow continues. We have to be at the hospital at 8am for an 11am CAT scan. They told me he needs to drink contrast (that should go over well) before the scan. Of course he can't eat or drink in the morning. I guess we don't have appointments with Dr. Laquaglia, the oncologist, or the spinal surgeon. Apparently we will have to just sit and wait for them to be available. We have no choice, that is what we have to do.
Please be praying tonight for:
1. Brady to have an easy time with the anesthesia tomorrow for the CAT scan. Last time he had that strange fever the night after his test and we were in the hospital for 3 days.
2. That Brady will stay content throughout the long day tomorrow as we wait to talk to the doctors.
3. Pray for our parents at home caring for Eli, Cara, and Allie. Having full time duty of 2 two year olds and a 5 month old is not easy!
I feel so far away tonight, but I'm so glad we can all keep in touch through the blog. Until tomorrow...
AWW! I am so happy that you guys made it. AND HE TOOK 2 STEPS! Yay! Steps for Brady! I know you were excited, there are so more to come. I will keep him in my prayers. GOOD LUCK!
ReplyDeleteYeh!!! We are so excited for you guys, i've been watching for your post alllllll daaaay! He's so cute, thanks for the pics. Expecting great news. love to all of you. God Bless
ReplyDeleteYou made it!!!! I am sure it was fascinating for Brady to be on an airplane.
ReplyDeleteI will keep all your requests in my prayers tonight. Try and get some rest tonight! Love you guys!
Yeah Brady!! 2 steps and wearing bunny ears no less!! Way to go kiddo!!
ReplyDeleteThe pictures of Brady are SO sweet!! Thanks for sharing!
How nice that your parents are able and willing to be with your other 3 children while you guys are traveling!! That is truly a blessing!!
Praying for you guys tonight and that tomorrow goes smoothly, that Brady tolerates the CAT scan, that you can see the doctors sooner rather then later and that you guys can enjoy one another while it is just the 3 of you!!
So glad you made it there safely! You haven't been far from my thoughts today. Sounds like you had a OK day, despite everything going on. I am so thrilled to hear about his steps! Go Brady! I will be praying extra hard for you all for tomorrow. I will pray for the doctors schedules to be free for a smooth day! I'm eager to hear what tomorrow will bring...I hope you have a restful night tonight too! Extra prayers to the family here too. And Dr. L!
ReplyDeleteI am glad you guys made it there safe and sound! That is awesome that Brady took some steps. Just know you may seem miles away but we carry all of you in our hearts all day everyday. So you are closer than you think my dear friend! BIG HUGS!!!!!! Love Danna Banana
ReplyDeleteWhat a beautiful little guy! We continue to lift you all in prayer -- for the "outside" things like appointments and cat scan and things at home. We pray for the "inside" things-- peace and confidence and hope and healing. The blessings of the Lord be with you all and surround you with infinite love and grace. In Jesus Christ's name. Amen
ReplyDeleteThe pictures are so cute! That smile is the best. There are many, many prayers with you.
ReplyDeleteAnne
So glad to hear from you! Your voice sounds encouraging and the pics of Brady are adorable. Maybe the bunny ears will be his ticket to walk. How exciting he is feeling confident and strong to stand, even if it is only a few seconds. The seconds will be minutes and before we know it he will take steps.
ReplyDeleteMy prayers are with you to relax and find peace while waiting. I understand how difficult it can be but when you are relaxed and at peace, Brady will be to. He will pick up on your peacefulness.
I'm glad you are there, that is the big step.
Love and peace of heart,
Deb R.
I'm so glad you are safely in NY and my prayers are with you and sweet, precious Brady! I hope tomorrow goes great!
ReplyDeleteMatt and Megan,
ReplyDeleteSo glad the day went without a hitch, we were praying all day for where ever or whatever you were doing at the moment. The pictures of Brady are so sweet. It is so obvious that he is feeling better and holy cow 2 STEPS!! We are so proud. Wait until I tell Aiden in the morning, he will give his big cheer for Brady. We will continue to pray for all the "stuff" you have to do tomorrow. It is clear that God has put Dr. L in your lives for a reason. Keep leaning!!!
Lot of love,
Robin
I am so happy that you made it to Sloan! Yeah! How amazing that God has made this possible for little Brady! God definatley has a greater plan for him! Good luck with everything tommorrow.God Bless you all.We all will be praying for you!
ReplyDeleteGlad to hear the trip went smoothly and you got settled in. Good luck tomorrow. I'll be praying. Great job, Brady, with those steps!! :o)
ReplyDelete-Rosalie
He is adorable and looks like a little hamm(no pun intended :). He is doing an amazing job and I know he will continue doing just as well with his amazing parents and god looking after him.
ReplyDeleteI wish you the best in your upcoming days
Love Rachael
meg-
ReplyDeletestay strong and focused! i will pray for the things you asked as well as for you and matt. The waiting and not really knowing are very hard. i will pray for strength and courage for you to manage this day. just keep a picture of that little "stepping bunny".
kristie
YAY he took 2 steps!! WOOT WOOT for Brady!!
ReplyDeleteGlad you arrived in NYC safe and sound. Good luck today!
Good Luck to Brady. Ive been following your story and am now de-lurking to say im thinking of you and praying for the family back home babysitting.
ReplyDeletexx xx
Yahoo1 Go Brady!!! I am so glad you made it safely. I hope all had gone well today. I will continue to pray for you all. The pictures are truly awesome. Brady looks so good standing there pointing to the tarmac. Too cute. Take care and stay strong all will be well.
ReplyDeleteMegan,
ReplyDeleteI am sooo glad to hear about his progress. Woo HOO!!! I pray for a quick recovery. I, too know how frustrating it can be waiting. You are strong you can do it. Hopefully we both will be at own homes with our boys soon.
:)
Hi Megan,
ReplyDeleteI want you to know that my mother in law ( a godly woman and prayer warrior) was updating me on you and Brady as I have been crazy busy with Caleb's treatments and more. We will also be in prayer. One of your recent posts brought to my mind the verse I have been working on hiding in my heart...Heb. 10:23"Let us hold fast to the confession of our hope (faith), not wavering, for He who promised is faithful."
Dana
www.calebsstory.com