Wednesday, March 4, 2009

Wacky Wednesday

Brady and I headed to Strong at 8:30 this morning for his 9:30 appointment. When we arrived to the clinic they drew his blood through his Broviac (no tears!) and then we had to wait an hour for it to come back. The clinic is a series of small rooms with glass doors (similar to an ER) staffed by nurses. They also had a playroom where we decided to hang out and wait for results. Brady had fun playing with the train table and tearing through a huge pile of books. Then two volunteers came in wearing "Better Day Buddies" tshirts. They are volunteers who come to the clinic to lead crafts and just try and make the kids smile. How fun! It happened to be "Wacky Wednesday" today. They gave us a Dr. Seuss book with that title and then we made wacky hats. I think I loved it more than Brady! This organization is all volunteer/donation led and I just kept thanking them for being there.

We headed back to our room to start the transfusion at 11am. They just hooked up one of his "tubies" to an IV pole with one bag of red blood cells. The transfusion took 2 1/2 hours. In that time we played, sang songs, watched Elmo, and ate cookies (Brady sternly refused the mac n cheese they offered him....NOOOOO!) At his usual nap time (1pm) Brady curled up on my lap and began biting his blankie as always. Within minutes he was out and stayed asleep for 1 1/2 hours. He couldn't feel my tears hitting his sweet little bald head as he slept. I just kept crying thinking about how proud I was of him. In those quiet moments I often think to myself, "How did we get here?" From our room I could see into two rooms nearby. In one room was a teenage girl with cancer who did not look well. She was so weak that she had to be in a wheelchair and it broke my heart to think of her being sick during such a fun time in her life. In another room there was a young couple who had a baby not more than 5 months old who was getting a transfusion. As I held my precious boy feeling sorry for myself, I thought about how everyone there has a story, a difficult one, but we are all in the same boat. We are all there, praying for miracles...

We were home by 3:30 and the afternoon/evening was very chaotic. Lots of whining and crying among all 4 Williams children. Matt and I are exhausted, as always, and trying to come up with a game plan for tomorrow. Our appointment got moved up to 8:30which means we leave here at 7:30. Although earlier, I'm glad to have it bumped up as Brady can't eat or drink before anesthesia. We won't get results before we leave, but hopefully will hear from the doctor in the evening.

Please join us in praying for:
-Those administering anesthesia...pray that Brady is safe and sound during both scans
-Brady's comfort and sense of security throughout the day.
-Strength for Matt and I as we sit and wait in the same waiting room that we were in when we got the devastating news of Brady's cancer. I'm not looking forward to going back there.

God bless all of you who continue to stand by us and pray for us!!!


  1. Thank you for the update tonight. I thought of you all day. You will have many prayers surrounding you tomorrow and in the days ahead.

  2. Sending my prayers and love in a GIANT security blanket; wrapping it around all of you!

    Thank you for keeping us up to date.

    You all are in my thoughts and prayers all the time.

    Love, Deb R.

  3. Megan I can't help but see a book coming out of you someday. All of the blogging and journaling, and these little things God shows you as you cry in the waiting rooms of other's sufferings and not just your own. you are an amazing young woman and God has a purpose in all of this. You are a strong tower who will not bend when the storms come blowing, most would have crumbled by now. Russ and I have always found it's in the times of suffering when you are closest to God, in our weaknesses, He is strong though. We love you guys, stay strong and true.

  4. You have such a heart for others, Meg. I'm glad things went smoothly today, I was thinking of you all day. I hope the whole Willams Fam is able to get a good night's sleep tonight and is feeling more refreshed in the morning. Good luck tomorrow. I'll be praying for you.

  5. Sending prayers and hugs sweetie.

  6. I follow your blog everyday. And I am amazed by your courage and strength. You are an amazing person. I look at your sweet little family and think how lucky we are to have people in this world as wonderful as you and your family. Brady is such a handsome little guy. For all that he is going through he is a ray of sunshine. I loved his video. My girls and I pray for you and your family and especially for Brady every night before we go to bed. I hope all goes well tommorrow. We will be thinking and praying for great news. All our love and prayers!

  7. Good luck today! I will be thinking of you and praying for good news! Try to stay positive!

  8. Meg, Matt & Brady,
    I wish you the best today and my prayers are with you guys.

  9. I agree with could benefit so many families by writing the story of Brady sometime.
    Prayers are with you right now!

  10. Matt & Megan,

    Your Brady Boy has continued to pop into my head all day. I can't wait to hear more of the miracles in Brady's life as you go through a crazy day with the CT and MRI. Your strength (a gift from God) is so encouraging to me every day that I read. We love you all and faithfully pray!

    Love ya,

  11. I am so happy to hear that Brady is adjusting to his "new life" procedures. Ya gotta love him!


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