Brady and I headed to Strong at 8:30 this morning for his 9:30 appointment. When we arrived to the clinic they drew his blood through his Broviac (no tears!) and then we had to wait an hour for it to come back. The clinic is a series of small rooms with glass doors (similar to an ER) staffed by nurses. They also had a playroom where we decided to hang out and wait for results. Brady had fun playing with the train table and tearing through a huge pile of books. Then two volunteers came in wearing "Better Day Buddies" tshirts. They are volunteers who come to the clinic to lead crafts and just try and make the kids smile. How fun! It happened to be "Wacky Wednesday" today. They gave us a Dr. Seuss book with that title and then we made wacky hats. I think I loved it more than Brady! This organization is all volunteer/donation led and I just kept thanking them for being there.
We headed back to our room to start the transfusion at 11am. They just hooked up one of his "tubies" to an IV pole with one bag of red blood cells. The transfusion took 2 1/2 hours. In that time we played, sang songs, watched Elmo, and ate cookies (Brady sternly refused the mac n cheese they offered him....NOOOOO!) At his usual nap time (1pm) Brady curled up on my lap and began biting his blankie as always. Within minutes he was out and stayed asleep for 1 1/2 hours. He couldn't feel my tears hitting his sweet little bald head as he slept. I just kept crying thinking about how proud I was of him. In those quiet moments I often think to myself, "How did we get here?" From our room I could see into two rooms nearby. In one room was a teenage girl with cancer who did not look well. She was so weak that she had to be in a wheelchair and it broke my heart to think of her being sick during such a fun time in her life. In another room there was a young couple who had a baby not more than 5 months old who was getting a transfusion. As I held my precious boy feeling sorry for myself, I thought about how everyone there has a story, a difficult one, but we are all in the same boat. We are all there, praying for miracles...
We were home by 3:30 and the afternoon/evening was very chaotic. Lots of whining and crying among all 4 Williams children. Matt and I are exhausted, as always, and trying to come up with a game plan for tomorrow. Our appointment got moved up to 8:30which means we leave here at 7:30. Although earlier, I'm glad to have it bumped up as Brady can't eat or drink before anesthesia. We won't get results before we leave, but hopefully will hear from the doctor in the evening.
Please join us in praying for:
-Those administering anesthesia...pray that Brady is safe and sound during both scans
-Brady's comfort and sense of security throughout the day.
-Strength for Matt and I as we sit and wait in the same waiting room that we were in when we got the devastating news of Brady's cancer. I'm not looking forward to going back there.
God bless all of you who continue to stand by us and pray for us!!!