Not too much to report today. Brady had a great night and all 4 Williams survived the time change. They all slept in an hour later and then we just pretended it was a normal day. Brady is eating and playing wonderfully today.
Matt has tomorrow off as we are supposed to go to a follow up appointment with the oncologist tomorrow. I'm not sure if we still need to go since we spoke to her in the hospital. I'm going to call her tomorrow. We also are anxious to get the catecholamine results.
Allie needs a 4 month appointment with our new pediatrician this week. We LOVE our new doctor already. She came by to visit Brady both days were in the hospital this last time. What a great impression that made!
Cara has an appointment Friday with an eye specialist. We are concerned that she tips her head very far to one side when looking at things in the distance. It is as though she is trying to use only her right eye. I took her back in October and the doctor wanted to wait and watch it for 6 months. Well, here we are 6 months later and it is still a problem. I've been googling lately about it and think it sounds a little bit like 4th nerve palsy. I know doctors just love it when parents do a google-diagnosis, but hey---I've learned to be assertive. I've read that an MRI is often ordered in cases like this and that makes Matt and I so very nervous. Please be praying for this upcoming appointment.
Our biggest goal this week is to make contact with Sloan. I'm praying that by the end of the week we will have a plan.