Not too much to report today. Brady had a great night and all 4 Williams survived the time change. They all slept in an hour later and then we just pretended it was a normal day. Brady is eating and playing wonderfully today.
Matt has tomorrow off as we are supposed to go to a follow up appointment with the oncologist tomorrow. I'm not sure if we still need to go since we spoke to her in the hospital. I'm going to call her tomorrow. We also are anxious to get the catecholamine results.
Allie needs a 4 month appointment with our new pediatrician this week. We LOVE our new doctor already. She came by to visit Brady both days were in the hospital this last time. What a great impression that made!
Cara has an appointment Friday with an eye specialist. We are concerned that she tips her head very far to one side when looking at things in the distance. It is as though she is trying to use only her right eye. I took her back in October and the doctor wanted to wait and watch it for 6 months. Well, here we are 6 months later and it is still a problem. I've been googling lately about it and think it sounds a little bit like 4th nerve palsy. I know doctors just love it when parents do a google-diagnosis, but hey---I've learned to be assertive. I've read that an MRI is often ordered in cases like this and that makes Matt and I so very nervous. Please be praying for this upcoming appointment.
Our biggest goal this week is to make contact with Sloan. I'm praying that by the end of the week we will have a plan.
Glad to hear you all had a good day. I will continue to pray for you all. God will take care of everything. Yvonne
ReplyDeleteHi Meg,
ReplyDeleteI'm glad Brady had a good day and is up and playing.
Allie is four months already!! Can you even believe it? What a dolly she must be. I always loved the four-month mark. So many fun and exciting things are happening and continue to happen quickly for several months once you get there (as you know). :o)
Don't worry about whether the doctors may or may not like you doing searches for information. You need to be informed so you can make the best possible decisions for your kids. Plus, doctors make general responses, diagnoses, and recommendations unless given very child-specific information. As a parent, it's hard to know what you should be telling them to provide them with the information that is needed and most improtant without doing a bit of research.
Keep up the great work advocating for all of your kids! :o)
-Rosalie
Night Night Brady! you're so brave and so strong, can't wait to see what you become. What a good boy to say your prayers. we never stop praying for you that's for sure. May you guys get the news from Sloan you're waiting for! Keep your praise music going, and getting in the word.
ReplyDeletelove to you!
The people of the Alexander UMC are praying specifically about you getting in touch with Sloan this week. Just wanted you to know.
ReplyDeleteglad to see the doc is looking good for you guys...i love she came by both days you brady was in. nice for her to stay in touch!
ReplyDeletewe are praying for you all...love seeing those precious kiddo pics from you
Megan,
ReplyDeletePlease try www.angelflightne.org They are a non for profit group of volunteer pilots with planes. They transport patients and their familes to medical facilities.
We are all praying for you and your family!