I thought I would surprise all of our faithful followers and post mid day today. Frankly I'm too tired today and hope by 8pm that I'm curled up on the couch maybe watching American Idol.
Allie is going to be just fine! Thank you Lord!!! She does have a ventricular septal defect, 3 small holes in her heart. However, the doctor assured me they are very common and that it will resolve on its own. We will check it again in 1 year. Allie was an amazing baby throughout the 2 hour appointment. They did lots of tests and she even had to lay still for 30-40 minutes for an ultrasound. She actually just drifted off to sleep and I got to lay next to her. Everyone in the office agreed she is a dream baby!
Many people tell me that they don't know how to leave comments on the blog. I wanted to give instructions on how to do so because I thought it might be neat for people to be able to ask us questions today if they have them. I realize from talking with friends and family that people have many questions about Brady and his treatment. So today is "Tuesday question day" ask away and I will post the answers in the blog for tomorrow. Here are directions for how to leave a comment:
1. Under this post you will see small writing. On the right side you will see "# comments" for example "5 comments." Click on that.
2. A new screen will open with the post and then comments already written underneath. Scroll down.
3. You can type a comment in the white box. Write you name in the white box after your comment.
4. In the small white box under the comment box it will say "select profile." The easiest way to do this is to scroll down and choose "anonymous." If you remember to write you name in the comment box I'll know who you are.
5. Then just click Publish Comment and your comment will be posted.
I look forward to answering any questions:) Please keep praying that God will continue to open doors to get us to NYC...just one week away...
Aw. I am glad that everything is going great for Allie. Have you heard anything from your insurance for acceptance for your "doctor of choice"?
ReplyDeleteGlad to hear Allie's going to be ok, and she was so calm for the appointment. What a dolly. It's so hard to see your baby upset and scared and not really be able to do anything but watch and wait for it to be over. I'm so glad that wasn't the case today, and Allie was so peaceful. :o)
ReplyDelete-Rosalie
Glad to hear Allie is fine!!
ReplyDeleteMegan,
ReplyDeleteI've been following the blog since you posted on the Yahoo group CPKids (when Brady was initially diagnosed w/ CP). It has been amazing to follow his journey. You are right in that Brady's story has touched so many lives all around the world. I live in WI and check in daily. My eight year old daughter has CP (hence the reason I belong to the Yahoo group) and has undergone a few major surgeries here and there too.
You are doing a GREAT job advocating for Brady. People forget how difficult these things are not only for the kids that are going through them, but for the moms and dads too. I'm glad you have a family that has surrounded you and supported you during this time. It is great that you and your husband are taking time out to spend w/ one another as well as your kids.
We'll pray for the best for Brady this week as he meets these new doctors and that the medical staff will know exactly what to do. God's guidance for you both as you make this big life decisions during this time.
-Marieke
Here's a question for you...Brady is one of triplets...how are the other 2 handling him being sick? Do they know he is sick or understand it? Mine are 15 months and they are just now realizing when someone is hurt and is crying, they go over to them and try to kiss them. So I was wondering if they treat him any different or are nicer to him now? :)
ReplyDeleteAllison
I'm happy to know Allie will be ok. My niece had the same thing as a small child. She is now a 16 year old, healthy young lady!!
ReplyDeleteAwesome to hear that Allison is going to be fine. Isn't God great? I continue to lift you all up in prayer daily and I know that he holds you all lovingly in his hands. I look at the picture you sent of Brady every day and it helps to keep me focused on his needs and the needs of other children with cancer. You truly are ministering to others by sharing your families lives. Thank you both.
ReplyDeleteMegan and Matt, I have been praying for your family since the beginning and just want to let you know that God is a wonderful and great God and He will watch over you and take care of you all! Claudia keeps me up-to-date! Sandy W.
ReplyDeleteMegan,
ReplyDeleteMy friend who follows your blog (Allison) told me I should contact you and check out your blog. I have learned alot here and you are a great help to my sanity ( what I have left) :) My son who is almost 8 months just got diagnosis with NB and OMS. I am in a whirl wind. I can only imagine how things are for you with having 4 kiddos. I would love to talk, either to vent or questions eachother. Email me when you get a chance.
averyandalexmommy@gmail.com
loveforlex.blogspot.com
Much love and prayers for you and your family!
Kari
Meg,
ReplyDeleteYou are such a wonderful supportive person. I can see that God is leading you to a new career.
I am so ESTACTIC that Allie will be okay. She looks so healthy!
Thanks be to God for all the blessings he has bestowed on your family and through your family. As we pray, we continue to become closer to our God.
You are such a model of God's faith.
Love and Prayers for Peace,
Deb R.
praise god for the VSD being small. what a blessing...and hooray for the perfect little pea in the office too. it helps when they are so cute too!!!
ReplyDeletegreat news! okay a question or two or three! How long is the surgery?
ReplyDeleteWill there be more chemo to follow regardless if they think they got it all?
Is Brady's hair still falling out even though it's buzzed can you tell and if so how long do they battle that once chemo's done?
God Bless you. You are always in our hearts!