Another day, another series of frustrating phone calls. I'm talking to several nice, well-meaning people every day. However, progress is slow and I can't believe that in the year 2009 when a child has cancer, that it can be this difficult to get an appointment and to get your insurance to cover it. Here is the news from today:
1. Sloan received the fax (2 times actually) of all Brady's records.
2. The CT scans and MRIs are in the mail on their way to Sloan.
3. The pathology dept is preparing slides to be sent to Sloan.
4. Our insurance company has only approved a "2nd opinion consult" at Sloan. This is enough to get us an appointment, but that is it. This is an obstacle, but I have our case manager (who is wonderful)working on it.
Sloan will not pass Brady's info on to the medical team until they have the pathology slides in their hands. Hopefully, they will be in the mail tomorrow. The office staff at Sloan loves hearing from me everyday I'm sure, I think that is why they finally caved and told me that March 24th might be a possbility for an appt if everything is in order.
Brady is down to needing bloodwork only on Thursdays. He continues to be brave and adorable throughout the whole process. I'm calling Strong tomorrow to inquire about the catecholamine results that we still don't have.
Please be praying:
1. For Cara and her appointment with the eye specialist tomorrow. We are praying that whatever is wrong will be easily fixable. Pray that she will tolerate the exam well and I will be able to clearly articulate what is going on.
2. For me, as I'm really struggling with anxiety and worry right now. The details of how to keep our family going while existing in two different places is overwhelming. There are so many small details to think about as far as being in NYC, living in a hospital, traveling back and forth, arranging help at home...My heart is heavy as I know what is coming for Brady. It was excruciating to watch him endure the last surgery/recovery, my "mommy heart" is breaking at the thought of it.
3. For our parents who continue to bear a lot of the "burden" of helping us with the kids. Keep in mind that we still are attempting to raise 4 kids under 2, that alone is an exhausting job. We are in the midst of the "terrible 2s" and trust me, the grandparents put up with a lot! We praise God for them, but need you to pray for them as well.
God is truly revealing himself to us through the tremendous blessing we have everyday in our friends and family. It is impossible to deny the awesome power of God when we look at all He has done for us!