At 4:15 today we got the call we have been waiting for! Sloan called with both a consult appointment and a surgery date. The pit in my stomach hit an all new level as I wrote the dates down on my calendar. We will meet with the oncology team and the surgeon Dr. Laquaglia on Wednesday April 1st (also a meeting with a neurosurgeon either Wed or Thurs). Brady's surgery will be Monday April 6th. Our plan right now is to fly down Tues March 31st and hopefully get a room at the Ronald (we will find out about that next week). Wednesday will be a day of appointments and possibly one appointment on Thursday. Then we will fly back Thursday later in the day. We thought it will be worthwhile to be home Friday and Saturday. Then Sunday later in the day we will fly back and be there for surgery Monday. From that point we will take it day by day. Matt and I plan on being there while Brady is recovering in intensive care. After that, one of us will fly home for a few days and then we will switch. Whoever stays with Brady will have to stay in the hospital until the other person returns.
So there is the plan. I'm going to work on researching some flights tonight. There are a ton of details to work out...what to bring, what not to bring. Several of my online triplet mommy friends have told me that people don't use car seats when traveling by taxi in the city!!??! I'm not sure if that applies to rides to and from the airport as well...it seems crazy! If that is the case we won't have to bring one. Of course we will have the stroller and everything Brady will need for 3 weeks or so.
Obviously there are many areas for prayer right now. My soul can find peace when I think of all of our friends and family faithfully lifting our names up to the Lord. Please continue to pray:
1. For Dr. Laquaglia the surgeon who will be performing this very serious surgery. He is the best there is, but we know who will be guiding his hands as he operates on our precious boy.
2. For Brady as he enjoys a few weeks at home and then a few scary weeks once we are in NYC. We continually pray for his complete healing. We continually pray for God to bring him comfort and security even when he hurts.
3. For Matt and I as we make plans to split our family. This situation saddens me so greatly...please pray for peace in this area.
4. For our parents, family, and friends who will be helping care of Eli, Cara, and Allie when we are away.
I also wanted to let you know that the Brady Bracelets are in! If you would like to sell some at your place of work, church, or community event, please email my brother Andy at email@example.com