Today was another day of planning and preparation. Brady had his last visit with our home nurse (until after we get back) and she helped me plan what supplies we will need to bring with us. The medicine that we flush his tubies with has to be refrigerated and the access cap has a needle on it, so I'm thinking we need to check the supplies in our luggage.
Tonight I worked on a schedule for who will be with Eli, Cara, and Allie while we are gone. We are SO thankful for our parents, family, and friends who are helping in this area. We have also worked it out so that my mom can fly down and be with me when Matt flies home. Then his parents will come down and be with him for a few days when he goes back to NYC. I used my "teacher skills" to work out this complicated arrangement!
Please be praying for God's protection over Brady even right now. He is acting moody these days and his appetite is sometimes off. We are always worried that the cancer is spreading somewhere in his body...As much as we don't want to leave home, we just need to get to NYC and get this tumor out!