Brady needs a Transfusion

Brady had blood drawn today (like every Monday and Thursday). I called for results at about 4:30pm and everything looked okay except for his hematocrit (red blood cells) which is 23. That means he will need a blood transfusion. The NP is going to set it up for Wednesday in the outpatient clinic. It will involve some initial bloodwork, the transfusion, and then some additional test afterwards. I guess the process is 3-4 hours (sounds like fun with an almost-two-year-old!) We will be back in Rochester the next morning (Thursday) for his CT and MRI under general anesthesia. We haven't heard from the oncologist as to whether or not she has heard back from Sloan Kettering. I'm thinking next week might involve us just being home, then possibly NYC the week after? We'll see...

I can't say how difficult it is to live day by day like this. The funny thing is, we all live like this, we just don't know it! I'm a HUGE planner...I have a calendar that sits on the counter at all times, I live by it! Through this experience I have had to adjust to living just one day at a time. I don't know if I'll be home tomorrow, or in the hospital. I don't know if I'll be home next week, or in New York City. It is unnerving I guess...certainly a change of thinking for me. Aren't I glad I have my one constant...my hope and trust in God that is the same no matter what the day holds!