Brady and I braved the snowy roads this morning and went to see Dr. Korones for our follow up appointment. Dr. Korones was very happy with the scan results and again explained that the remaining "spot" is doing just what it should...nothing. The only thing better would be for it to go away completely, but for now, it is behaving itself! At our last visit, Dr. Korones thought this would be the last 3 month scan interval and that we could now move to 6 months. However, today he told me that he wanted to consult the national protocol for a scanning schedule. He called later this afternoon to tell me that we need to consider April Brady's 1 year post-treatment date since this was the month when he had his last surgery. So, the national protocol recommends doing scans every 3 months until you reach the 1 year post-treatment date. This means we will be doing scans in 3 months:( With one more great 3 month report, we will move to the 6 month schedule. Fine...we can handle that.
Brady is becoming such a brave and tolerant boy. Today he allowed Dr. Korones to check him over without any complaint. Of course the "inside the diaper poking and prodding" made him quite mad, it always has. When it came time for the nurse to weigh and measure him, he hoped right at the scale and smiled. Then he stuck his arm out for his blood pressure. My scared little-lamb has really become quite sure of himself and he is quite able to perceive safe from scary situations.
Our big week is coming to a close and I couldn't be happier. Thank you for all of you who prayed, emailed, texted, called, and just make us feel so lifted up! Another victory for Brady:)
Showing posts with label scan results. Show all posts
Showing posts with label scan results. Show all posts
Thursday, January 28, 2010
Friday, October 16, 2009
ALL CLEAR!
Just got the call from the oncologist...ALL CLEAR!!!
We are shouting hallelujahs over here at our house!!!
The doctor said the "spot" is unchanged and unremarkable. Woo hoo!
God is so good and so are all of you!
We are shouting hallelujahs over here at our house!!!
The doctor said the "spot" is unchanged and unremarkable. Woo hoo!
God is so good and so are all of you!
Tuesday, August 4, 2009
Can't Contain My Joy
Okay folks, I'm letting you in on some great news, but only after you read the following disclaimer:
What you are about to read is information that we as Brady's parents are not allowed full access to. Yes, believe it or not, as a child's parent, you acutally don't have the right to request that test results be faxed to you before meeting with your doctor. Yes I know, you gave birth to the child, he/she belongs to you, yet someone else gets to know everything days and sometimes weeks before you. That is of course, unless you happen to be a very clever parent who also is in a medical field that could very well be related to your son's diagnosis. In that case you can call using your professional title and get the report faxed directly to your office.
My heart is overflowing with joy and relief that Brady's scans show no new tumor growth in the spine. The tumor is still there (darn---I'm still asking God everyday to just obliterate that thing!) but it hasn't changed since the last scan. The other areas scanned all looked clear. There was an area that the radiologist remarked about in the lung, but probably this is some sort of surgical involvement like scar tissue.
We are still waiting on the catecholamine results. This is the urine marker that if elevated would indicate that there is active neuroblastoma somewhere in Brady's body. If that is elevated, then there is a chance that there are new NB areas somewhere else in Brady's body. We will have those results when we meet with the doctor on Thursday.
So, we breathe a HUGE sigh of relief as we praise God for this wonderful news!
Psalm 66:19
but God has surely listened and heard my voice in prayer.
What you are about to read is information that we as Brady's parents are not allowed full access to. Yes, believe it or not, as a child's parent, you acutally don't have the right to request that test results be faxed to you before meeting with your doctor. Yes I know, you gave birth to the child, he/she belongs to you, yet someone else gets to know everything days and sometimes weeks before you. That is of course, unless you happen to be a very clever parent who also is in a medical field that could very well be related to your son's diagnosis. In that case you can call using your professional title and get the report faxed directly to your office.
My heart is overflowing with joy and relief that Brady's scans show no new tumor growth in the spine. The tumor is still there (darn---I'm still asking God everyday to just obliterate that thing!) but it hasn't changed since the last scan. The other areas scanned all looked clear. There was an area that the radiologist remarked about in the lung, but probably this is some sort of surgical involvement like scar tissue.
We are still waiting on the catecholamine results. This is the urine marker that if elevated would indicate that there is active neuroblastoma somewhere in Brady's body. If that is elevated, then there is a chance that there are new NB areas somewhere else in Brady's body. We will have those results when we meet with the doctor on Thursday.
So, we breathe a HUGE sigh of relief as we praise God for this wonderful news!
Psalm 66:19
but God has surely listened and heard my voice in prayer.
Sunday, May 17, 2009
Hopefully we all are turning the corner after our week of sickness. The kids are all getting better by the day. Eli still is quite stuffy and congested, but he seems happier today:)
Tomorrow Matt, Brady, and I will leave her at about noon. Our first appointment is with a surgeon to consult about having Brady's Broviac out. We are hoping to have it out ASAP. At 2:30 we will meet with the oncologist to discuss the results of Brady's scans. The wonderful events of the weekend have been a good distration, but the ever familiar pit in my stomach is slowly coming back as we approach tomorrow's appointment.
Of course I will update as soon as I can tomorrow. Thank you all for your contiuned prayers!
Tomorrow Matt, Brady, and I will leave her at about noon. Our first appointment is with a surgeon to consult about having Brady's Broviac out. We are hoping to have it out ASAP. At 2:30 we will meet with the oncologist to discuss the results of Brady's scans. The wonderful events of the weekend have been a good distration, but the ever familiar pit in my stomach is slowly coming back as we approach tomorrow's appointment.
Of course I will update as soon as I can tomorrow. Thank you all for your contiuned prayers!
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