Quiet Time

I think I finally fixed the time/date setting for my posts. It is about 2:30 and Brady is napping in his "crib" next to me. Matt, Brady, and I had lunch together when I arrived, and now Matt is heading home. Those of you who know me, know that I struggle with lonliness from time to time. I just can't wait to have us all under one roof again tomorrow night!!!

Brady has been the most precious boy these last few days. As the steroids wear off, he continues to become more and more like himself. He is giggling, finding ways to be silly, and initiated play (these are things we haven't seen much of since his spine sugery). The plan is to do chemo again later this afternoon (I think) and then discharge tomorrow later in the day after his shot. We are still finalizing plans for the home health nurse and getting the meds and supplies we will need.

As far as how he is feeling, he seems to be great! He is kind of on a normal sleep schedule, just getting to bed later and getting up later. Matt said he slept until 8:45 this morning (only becuase Matt politely told the med student to "get out" when they came to check Brady out at 6:30 am) Go Daddy! He is taking one afternoon nap which is just like at home. He still wants to eat all the time. I have noticed him kind of gagging throughout the day, not sure if he is feeling nauseous, but he sure isn't acting like it. He continues to get Zofran around the clock.

I'm so thankful for these good days. I know it is going to get difficult when his blood counts start dropping, but I just pray for some of these beautiful, good days. I'm eating up his smiles, sweet voice, giggles, requests for cookies, and his gentle spirit. God has truly blessed us with this amazing boy...

Delay

We were down to one wire in Brady, which was his PIC (sp?) line in his arm. This was put in with the thought that his chemo would be administered through it initially. It threads from his arm to his major artery. He was going to be sent home with it still in place. Last night the nurse noticed some swelling in that arm and they ordered an ultrasound. They found a blood clot from the PIC line. Right now we are waiting to find out what is next. One doctor wanted to administer heparin, the head neurosurgeon did not think that was wise because of the risk of bleeding. We are just waiting, but it sounds like going home is put on hold for right now. Some good news: Brady was up last night, sitting on the bench in his room, feeding himself applesauce! He ate like a pig (one of the side effects from steroids) but it was so good to see him getting some nourishment. He ate another big breakfast this morning after a good night's sleep. He has taken a few rides around the unit in a little car they have here. What an absolutely amazing boy he is. I can't think that too many of us would be up and about after major spine surgery.