I think I finally fixed the time/date setting for my posts. It is about 2:30 and Brady is napping in his "crib" next to me. Matt, Brady, and I had lunch together when I arrived, and now Matt is heading home. Those of you who know me, know that I struggle with lonliness from time to time. I just can't wait to have us all under one roof again tomorrow night!!!
Brady has been the most precious boy these last few days. As the steroids wear off, he continues to become more and more like himself. He is giggling, finding ways to be silly, and initiated play (these are things we haven't seen much of since his spine sugery). The plan is to do chemo again later this afternoon (I think) and then discharge tomorrow later in the day after his shot. We are still finalizing plans for the home health nurse and getting the meds and supplies we will need.
As far as how he is feeling, he seems to be great! He is kind of on a normal sleep schedule, just getting to bed later and getting up later. Matt said he slept until 8:45 this morning (only becuase Matt politely told the med student to "get out" when they came to check Brady out at 6:30 am) Go Daddy! He is taking one afternoon nap which is just like at home. He still wants to eat all the time. I have noticed him kind of gagging throughout the day, not sure if he is feeling nauseous, but he sure isn't acting like it. He continues to get Zofran around the clock.
I'm so thankful for these good days. I know it is going to get difficult when his blood counts start dropping, but I just pray for some of these beautiful, good days. I'm eating up his smiles, sweet voice, giggles, requests for cookies, and his gentle spirit. God has truly blessed us with this amazing boy...