Friday, February 6, 2009

Quiet Time

I think I finally fixed the time/date setting for my posts. It is about 2:30 and Brady is napping in his "crib" next to me. Matt, Brady, and I had lunch together when I arrived, and now Matt is heading home. Those of you who know me, know that I struggle with lonliness from time to time. I just can't wait to have us all under one roof again tomorrow night!!!

Brady has been the most precious boy these last few days. As the steroids wear off, he continues to become more and more like himself. He is giggling, finding ways to be silly, and initiated play (these are things we haven't seen much of since his spine sugery). The plan is to do chemo again later this afternoon (I think) and then discharge tomorrow later in the day after his shot. We are still finalizing plans for the home health nurse and getting the meds and supplies we will need.

As far as how he is feeling, he seems to be great! He is kind of on a normal sleep schedule, just getting to bed later and getting up later. Matt said he slept until 8:45 this morning (only becuase Matt politely told the med student to "get out" when they came to check Brady out at 6:30 am) Go Daddy! He is taking one afternoon nap which is just like at home. He still wants to eat all the time. I have noticed him kind of gagging throughout the day, not sure if he is feeling nauseous, but he sure isn't acting like it. He continues to get Zofran around the clock.

I'm so thankful for these good days. I know it is going to get difficult when his blood counts start dropping, but I just pray for some of these beautiful, good days. I'm eating up his smiles, sweet voice, giggles, requests for cookies, and his gentle spirit. God has truly blessed us with this amazing boy...


  1. yea!!My heart is so much at peace hearing he's acting like himself more and more...especially the laughing...Praise God. i've known a couple people who really didn't suffer ill effects from the chemo, and i just continue to pray its better than what the steroids did to him. Sweet baby! Excited for you to be a family this weekend, and that you guys are getting some sleep, that's huge. love to you all

  2. Megan,
    I had an wonderful conversation with Andy today. Thank you! He is a amazing man and teacher, but don't tell him or his head will toooooo big!
    Enjoy your family time this weekend and bask in the warmth of God's love and peace,
    Deb R.

  3. Hi Matt and Megan,

    I am so glad that Brady is becoming more like himself, God is so good, Megan, I too have had issue with lonliness and anxieties over the years. My Mom gave me Psalms 91 to read, and whenever would feel alone and afraid, I would read it and it really helps. I will continue to pray for you and yours and I know God is with you each step of the way.

  4. Hi Megan! I'm glad to hear that Brady is handling the chemo so well so far. I'm sure that he will be glad to be at home soon and feeling more playful like his normal self. I continue to think about you guys and say prayers often. All of my family and friends have been sending prayers Brady's way too. He's becoming quite famous!!! :)

    Thank you for sixing the date and times on these posts. It was truly confusing me, which is fairly easy to do right now. ;)

    I hope that you are taking lots of pictures and videos. Capture the good and the bad- to remind you and him someday of what an amazing kid he is and how brave he has been. If you decide someday that you'd rather not have some/all of the pictures/videos, get rid of them. But at least you'll have that option.

    Keep staying strong and know that God is holding you up when you're not.
    :) karen

  5. Megan, it is good to hear that Brady is doing well. I am praying that he continues to do well and not suffer the side-effects.

  6. Megan,
    I am so glad y'all get to go home tomorrow! I can only imagine how much you crave to be home with all of your family. If you ever feel like talking, you can always call me. My phone number is in one of the emails. I am still praying daily.

  7. Hey Meg, Matt and family,
    I am glad to hear Brady is kicking butt so far in this battle.I think about you all daily and pray for little miracles each day.


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