Saturday, February 7, 2009

Learning the Ropes to Go Home

Brady had another uneventful round of chemo last night. He slept great all night...what a good boy he is! This round of chemo and the next use different medications, I'm just hoping that he tolerates the next round as well as this one. I can't tell you how amazing his mood is. He is silly, sweet, and just a lot of fun.

We are waiting for him to get his GCFS (Neupogen)shot which will help boost his white blood cells. We will have to continue this shot daily at home until his counts come back up. There is A LOT to learn when you are taking your child home after chemotherapy. We have a great deal of repsonsibility when it comes to changing the dressing around his Broviac, daily flushing his Broviac, giving medications, and eventually drawing blood through the Broviac. I did a few of these things when my mom had cancer, but it sure is different when you are working with a toddler! He doesn't like ANY of it, and it will take two of us to get the job done (one to hold him down and one to get the job done!) The home health nurse will come tomorrow and a few times a week as well. Her job will be to help with caring for the Broviac, drawing blood, and just helping to assess his overall condition.

Right now we are scheduled to be back for Cycle 2 of Chemo on February 24th. I'm realizing what a long process this is going to be. I so desperately want to just fast-forward through this daily grind of treatment and constantly being worried about how he is responding. I want to have xray vision and see inside to know if this tumor is shrinking. The fear and worry creep in during all of these times of waiitng...truly agonizing!

So...we made it through Cycle 1 hospital stay. Brady gets an A+!!! He has even started warming up to some of the nurses and doctors. He is becoming a favorite around here I think (how could they resist?)

We are hoping to be home around dinnertime! Imagine... the 6 of us sitting around the island tonight having dinner...I CAN'T WAIT!


  1. We hope the triplets love the triplet doggies we found! And maybe allie can stare at her bear and fall asleep. What's for dinner? lol Have a great time being together we're so happy everything seems smooth sailing right now. We will just keep praying that somehow, some way it will continue!!!! hugs and kisses everyone!!! Collin cried he didn't want to leave Eli and Cara! lol he finally had faces to the names he's been praying for:)

  2. We think Mom and Dad get an A+, too. You are always in our prayers.

    God bless you all,

    Rick and Sandy

  3. Dear Megan, Matt, and precious Family,

    You are all continually in our throughts & prayers. We are grateful for the good reports of Brady's first chemo cycle. We pray a joyous family time as you all reconnect. We pray peace, grace & strength for "Mom & Dad." Know you are always held in the palm of God's hand through the myriad of prayers of your friends & family. God's blessings on you all.

  4. Way to go Megan & Matt...and especially Brady! You will all get used to the Broviac care, home chemo and bloodwork. Give it time. PLEASE don't hesitate to call if you need help with any of it. We are only a short car ride away and would be there in a flash if you needed anything. By the way...Griff & Alli would LOVE to help keep the other kids occupied and perhaps Brady would like to see Griffin's tubie to help him know it will be OK.

    I'll be working on his Brovie shirts tomorrow and will call next week to arrange a time to drop them off. Keep in touch! Ellen, Matt, Alli & Griffin

  5. Megan and Matt,
    God does not want us to worry about what is to come. Remember to take one day at a time.
    What will come will come, so don't worry about tomorrow, but focus on the joys and triumphs of today.
    Rest in Christ that he will help you cross any bridge when the time comes.
    Thank you for sharing your journey. You and your family are written in my heart.
    Love, Deb R.


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