One More Time Tubies!

Surgery is scheduled tomorrow at 10:30. It shouldn't take more than 30 minutes as they just have to take out those darn tubies! Matt is taking Brady for surgery and I'm am holding down the fort here with Eli, Cara, and Allie. Please pray for Brady as he can't eat or drink until after the surgery, for his safety under anesthesia, and for a smooth recovery.



Today was a busy, fun day. Brady and I went to PT this morning. I'm starting to kind of cringe as I watch Brady be somewhat defiant these days. When PT Linda asks him to do something, sometimes he does, sometimes he says "no!", and sometimes he just goes and does something else. I know this is typical 2, and don't get me wrong, I love seeing Brady assert some control in his life, but I also want him to be a sweet, compliant boy. Not so sure that is in the cards for our hero Brady.

Three fantastic gift baskets were devivered to our house today!

Our amazing gift baskets from the angels at the Michael Napoleone Memorial Foundation. Thank you!!!

The kids were totally distracted from eating lunch by all of the new things in the baskets! We had fun trying sunglasses on Allie as she ate lunch!

Sweet baby Allie (7 months tomorrow) enjoying some green beans and her new sunglasses

The three amigos trying out their new hats, sunglasses, and beach chairs.

Brady and I flushing his tubies for the last time tonight. I was a little sentimental honestly. Notice Brady in the picture below cleaning his tubie with the alcohol pad all by himself. I kind of let the rules of a steriel procedure slide tonight! By the end of it, I had Brady saying "See ya tubies!" Isn't he a cutie?

The Festival of Hope is tomorrow night. I think I finally finished my speech and practiced my song a few times. Please say a prayer for me as I'm nervous to step out from behind my computer and speak in front of a live audience. I just want to convey Brady's story in a way that glorifies God and honors my precious boy. Matt and I will be lighting a luminary at the ceremony tomorow night in honor of Brady Andrew Williams...

5 More Days!

Let the countdown begin! 5 more days until those tubies are gone! I have this sinking feeling that something is going to get in our way of having this surgery. Perhaps the illness that just won't leave us alone? I'm sick again and now Eli spiked a fever again after dinner. He wouldn't eat and just wanted to be in his bed. It is like it has recycled itself and is starting all over again! I'm praying that God will restore health to all of us by the end of the week. I well up with tears just thinking about seeing Brady whole again!!!

This week's Brady plan: We will go to PT on Tuesday and Thursday. Also on Thursday I have to call to see what time to be at the hospital on Friday for surgery. When I made our appointment they thought he would go in later in the morning. Friday night is the Festival of Hope at Batavia Downs. I've been working on my speech that I will give that night. I'm basically just telling Brady's story and trying to use his experience to inspire hope in others (not too hard of a job!) Saturday the 6 of us are going to walk in the Walk 4 Life to raise money for All Babies Cherished. Sunday we have plans to visit some friends of ours. Looking forward to a great week!

Please keep Brady in your prayers this week! We continue to wait for the final histology reports from Sloan, for Dr. L's review of his scans, and of course for the upcoming surgery. Even though things have seemingly calmed down, this fight is far from over. I have to remind myself everday to continue to be a vigiliant prayer warrior on Brady's behalf.