It is 9:15pm and we still haven't heard from the oncologist regarding the results of the MIBG scans over the past 3 days. We have called the "on call" service two times and the farthest we got was speaking with the on call doctor who had no clue what was going on with Brady. We want the results of this test...we were told we would be called tonight not only for results, but to have the plan for Monday. The waiting is agonizing, frustrating, and really unfair. Add this to the stress of having to watch Brady endure another scan today without sedation. Although painless for him physically, he cries throughout the whole scan unaware of why he is being strapped down and put into a confining tube. As you can tell, spirits are low tonight. He is still up and upset at this hour, he has only slept about 1 hour all day. He is agitated, overtired, and is experiencing painful constipation.
We are praying for a weekend of some peace before we begin this battle. Pray for Brady's comfort, his sense of security... Pray for some peace within our family. Our little world is so vastly different than what it was just two weeks ago. That is difficult for me...I'm overwhelmed by everything and just keeping praying "strength for today God and hope for tomorrow."
We will update as soon as we hear anything for the doctor.