Tuesday, January 27, 2009
We did hear from Dr. Asselin (Brady's oncologist) this morning at about 8:45. This is the basic news we have right now. The samples that were collected during surgery and during the bone marrow biopsy continue to be tested and analyzed. She gave us good news that the samples continue to show "favorable" results, meaning that the more favorable they are, the better they will respond to treatment. This continues to be a work in progress and we will continue to get more info throughout the week. Brady does need to have a MIBG scan: "An MIBG scan uses a chemical called metaiodobenzylguanidine that is slightly radioactive to identify areas where the neuroblastoma has spread. It is a very sensitive method of detecting the spread of cancer in bone and soft tissues." We have to be there tomorrow for the first part of this process. They will use an IV to put the chemical into his system, then we wait 3 hours, then he is scanned. This process may also have to be repeated Thursday and Friday to get an accurate picture. We will be home each night after the scan. We also are meeting with neurosurgery Thursday to check Brady's surgery site to see if staples can be removed. On Monday we will be back at the hospital to have another bone scan done, probably the surgery to place his Broviac catheter, and possibly to start chemo. We will be admitted to the hospital at this point for 3-5 days. The catheter will be surgically put in place to administer chemo. It basically is two lines coming of out his chest that can be hooked up to administer drugs, eliminating the need for IVs. Blood can be drawn from it as well. My mom had this with her 2nd battle with lymphoma so I became very familiar with flushing it and keeping it clean.
That is the news of today. We are going to give Brady morphine to help him sleep today as he is having difficulty staying asleep for any period of time. What an amazing boy he is! Would you believe he crawled across the playroom today and even crawled up one step to get out of the playroom!!! He's my hero!
I'm posting a few pictures of our family so that our "new friends" can get to know us a little better. I hope they bring you a smile today...