We had a memorial service for my Grandma today. My heart was certainly somewhere else, but as much as possible I tried to let my mind be present as I listened to Pastor speak about God's grace. It is IMPOSSIBLE to look back on the events of the last month and not see God's grace sprinkled throughout this journey. With each day's events, I can't help but find incredible encouragement in the assuredness of God's grace from scripture, but how amazing to see it working in our lives. We are desperately trying to cling to this as we continually deal with feelings of sadness, anger, fear, and doubt. I wanted to share with all of you some of these miracles as a witness to God and His grace:
1. After our Dec23rd appt with the developmental specialist, Brady was given a diagnosis of cerebral palsy. The doctor set us up with an appointment for an MRI of JUST Brady's head for Jan21st. As the weeks went on and Matt and I studied more about CP, it just didn't seem like Brady. We both had an instinct that this was not what was wrong with Brady. I felt compelled to call the doctor and ask that they also do an MRI of the spine. The secretary was VERY reluctant to even ask the doctor, she told me several times it was not going to show anything for a kid with CP. I persisted. I called back two times and finally she agreed to run it by the doctor. They finally said they would do it if the insurance would okay it.
2.Up until Jan1st, we had Univera insurance. The first time the doctor submitted just the brain MRI to the insurance, they denied it. After Jan1st, we had to switch to Preferred Care. At this point, they submitted the request for both the brain and spine. We were okayed without any problem for both tests.
3. It is unimaginably horrifying to think of what would have happened if #1 and #2 above hadn't happened. We have been told that the tumor on Brady's spine could have caused paralysis at anytime. Had we not insisted that the spine be captured by an MRI, we would have never known about the cancer. Brady would most like have become paralyzed and more than likely the cancer would have spread making successul treatment highly unlikely. If we hadn't switched insurances, we would not have been able to get the spine MRI done, at least not for quite sometime.
It is impossible for us not to see our God at work in Brady's life. It is easy for us to be mad, we are mad. It is easy for us to be scared out of our minds, at times we are paralyzed by fear. But, we are committed to seeing God's grace in Brady's life and to share that with others. May he be a living testimony of God's goodness that is available for all who believe.
I got goosebumps reading this post. Parent intuition is definitely a gift from God. I'm so glad that you insisted on the MRI scan of his spine- even when the doctors didn't think it was necessary. Brady is a very lucky boy to have amazing parents like you.
ReplyDeletePraying for Brady and your family,
kristim81 from TC
Matt and Megan,
ReplyDeleteI have been working so much lately that Sandy and I have been out of touch, but we check your blog and are praying every day. Strength to the two of you, and peace like a river, and a touch from God's hand on Brady. God Bless
Rick
Megan,
ReplyDeleteDuring the time our Allison was in intensive care, I heard the saying, "Life is hard, but God is good." I'm so thankful to Him that in the midst of what I know to be agonizing fear, pain, and sometimes hopelessness, He has shown you His goodness. Know that we are praying for Brady and your whole family.
Love in Christ,
Stephanie
I am praying for your precious little boy. Hugs and prayers. Carolyn Wing grandma to Laura Stage IV neuroblastoma carepages.com page name LauraVDB
ReplyDeletethegrannyblog.blogspot.com
Hey guys,
ReplyDeleteJust wanted to let you know that we are still praying and thinking of you, Brady, and your family. God certainly is good. Draw as close to Him as you can until you can truly count it all joy.
XOXO
Joce
Romans 8:28 ALL things work for good for those who love the Lord.
ReplyDeleteMatthew 9:29 (NLT) 'Because of your faith it will happen'
Here is a web site you will need. It is the NBLAST listserve. http://www.acor.org/n-blastoma.html
ReplyDeleteSearch the archives => http://listserv.acor.org/archives/n-blastoma.html
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WOW! You have definitely been steered in the direction you needed to go! Your children are very blessed to have persistant parents.
ReplyDelete{hugs} melanie
Thanks for taking time to do this blog. It helps us pray more specifically for Brady's needs and those of the rest of your family. We have contacted the faithful prayer warriors that we know and they've have joined in, too. Know that you're always in our thoughts and prayers.
ReplyDeleteUncle Phil and Aunt Nancy
Matt and Megan,
ReplyDeleteMy thoughts are with you and your family. Having a child diagnosed with cancer is something that you, as a parent, are never prepared for.
Please know that you have many people thinking of you, and who are willing to assist you in whatever way you need them. My son, Owen was diagnosed with medulloblastoma when he was 3 years old. If you would like to talk to someone who has "been there", please do not hesitate to contact me.
Sending hugs,
Jennifer Pieber
www.owenpieber.blogspot.com
sbjfap2@gmail.com
Megan,
ReplyDeleteJust wanted you to know I gave your blog to my Pastor's wife and he was added to our prayer chain at church. My Pastor called his name out at church Sunday, let everyone know his story and we all prayed for sweet Brady. I am praying, my mom is praying and my whole church is praying for a miracle! Psalm 30:2: O LORD, my God, I called to you for help and you healed me.
fulloffaith from TC