Monday, January 26, 2009

Frustrated

When we left the hospital Saturday night we were told that the oncologist would call us Monday (today) with a plan for the final scan that needed to be done, Brady's surgery to place the central line, and the start of chemo. That is not what happened. A secretary from the oncologist's office called and gave us very vague instructions about being at the hospital Wed, Thurs, Fri, and Monday for different tests. By the time I called to clarify, no one was available to talk with us. So we wait...With waiting comes time, with time comes fear, and with fear I feel my faith slipping. Please be praying in that area.

Brady's days have been okay since coming home. He certainly isn't "our Brady." He is on heavy doses of steroids which cause him to be lethargic and sad. This poor boy...he never could walk, so he relied on crawling for his mobility. He would keep up with Eli and Cara so well and spent his days playing with them and then playing independently for hours. His mobility has been taken away as crawling is painful for him since the surgery. He seems much too weak to even know what he wants right now. So, we are having to carry him everywhere. My heart is breaking as I feel his spirit slipping further away. I miss so much the sounds of him playing with Eli and Cara.

We are currently trying to put together support "teams" to organize groups for the many areas for which we need help. Matt put it best when he said that he is learning to swallow his pride and accept help. We are graciously accepting help on behalf of our children.

Please, please keep praying for all of us. Please don't forget to pray for our whole family, including my mom, Ron and Sandy (Matt's parents), my sister and her family, and my brother and his family.

One more thing: There are SO many people contacting us via this blog, through email, and in other ways. This outpouring of support is so important to us right now as we need constant encouragement to keep going. I wanted to say that I'm finding it difficult to keep up with writing back to everyone and to contact everyone who has reached out. I WANT TO but right now, I just can't. I'm very sorry about that, and promise that in time I will get to it:)

7 comments:

  1. Our thoughts and prayers are with Brady and your whole family. We know Matt from step by step, and our hearts just broke for you all when we heard. We are thinking and praying for you all.

    Love,
    Brian, Lynn, Jeffie,& Ryan Owen

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  2. Dear Megan and Matt,
    Please do not worry about replying to any messages. Your postings are all that we need.
    Our prayers are with you every day and night; please know that.
    The Engels

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  3. Dear Megan and Matt,
    Our prayers are with you and the family.

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  4. Dear Megan and Matt, I want to let you know that my husband and I are praying for Brady and your entire family. Please, don't worry about not being able to answer our messages. We understand. You have more important things right now to think about. Bob and I go to church with your mom and dad, and we think the world of them. You are all a very special, very blessed family. When we are weakest is when we can be so thankful that Jesus is right there beside us, holding us up and carrying us. I know that He is with Brady through all this and with each and everyone of you.
    Our prayers will be with you
    God Bless
    Sandy and Bob Wells

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  5. I heard about Brady's illness at a women's Bible study last night. Nancy Hamm and Claudia attend, and asked us to pray! I am your neighbor. I live at 15 Irving Pkwy. I can help in an instant if needed..I am home all day. If you need anything - I'm there. Also, I had a bone marrow transplant 2 years ago - so if I can help with anything along those lines..you've got it. In the meantime, prayers are going up - He hears them...I'm living proof!!!
    Love,
    Janet Bates

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  6. meagan and matt
    I am praying for you every day several times a day. You are answering our mesages by keeping this site up and current. please remember that God is with you every step of the way he NEVER will leave your side. You are amazing parents and your children are beautiful. We love you all
    Brenda Brian Nicolette and Brandon

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  7. Dear Megan & Matt,
    Our prayers are with all of
    you. May God watch over Brady
    during his recovery!

    Rich & Leslie Owen

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