Saturday, January 24, 2009

Delay

We were down to one wire in Brady, which was his PIC (sp?) line in his arm. This was put in with the thought that his chemo would be administered through it initially. It threads from his arm to his major artery. He was going to be sent home with it still in place. Last night the nurse noticed some swelling in that arm and they ordered an ultrasound. They found a blood clot from the PIC line. Right now we are waiting to find out what is next. One doctor wanted to administer heparin, the head neurosurgeon did not think that was wise because of the risk of bleeding. We are just waiting, but it sounds like going home is put on hold for right now. Some good news: Brady was up last night, sitting on the bench in his room, feeding himself applesauce! He ate like a pig (one of the side effects from steroids) but it was so good to see him getting some nourishment. He ate another big breakfast this morning after a good night's sleep. He has taken a few rides around the unit in a little car they have here. What an absolutely amazing boy he is. I can't think that too many of us would be up and about after major spine surgery.

2 comments:

  1. Dear Megan,
    I am the school nurse at Robert Morris and I know what it is like to have a child with the diagnosis of cancer. The best advice I can give you is to take things one day at a time, sometimes one hour at a time, and let your friends and family and be your source of support at this time. If there is anything at all I can do... food, child care, a listening ear, whatever, please feel free to call (344-1587). I would like to help as I am familiar with Strong, the RM house and what it is you are going through. Keep your faith and know that many people are praying for you and your family.

    Love,
    Laurie Napoleone

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  2. Meg- We will be praying for the PIC line and the meds he might need. One step at a time... one moment at a time..... Great on the eating.... that is what we mother's measure everything our kids do is by how well they eat... lol.... give him a squeeze from me....
    Lisa

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