We had a great family day today. We were all in our pajamas until 11 or so...definitely a great day:) Matt isn't going back to work until Thursday, so I'm looking forward to a lot of "lazy days" around here (ha! lazy days with 4 kids)
I had a few calls to make regarding insurance and setting up appointments. We have our follow up appt with Dr. Laquaglia on April 22nd. That means we will probably fly down that morning, see him sometime in the afternoon (again, no specific appt time), and hopefully fly back that night. It is tough to stay just one night at Ronald because you have to clean all sheets and towels before you go. We also looked into Corporate Angels (free flights on corporate planes.) There are flights that day, but leaving from Elmira, which is two hours from here. Not sure what we will decide to do yet. We have to figure out if the money saved by using a free flight is worth the extra 4 hours of driving time with a toddler:)
I also called to see if the pathology reports were available from the tumor that they took out during surgery. I'm struggling now trying to figure out who is our "go to" person as far as Brady's cancer treatment. We were hoping to make more of a connection with a doctor at Sloan, but really our trip focused primarily on the surgery. We did speak briefly with a member of the oncology team on Friday before we left, Dr. Modak. He was very kind, informative, and seemed to really understand our concerns. I called his office today to see if he could contact us with the results, but didn't hear back. It's obvious that we have to stay on top of things now. No one at Sloan has our name on their "to do" list. We also called our oncologist here at Strong just to touch base with her.
We are still rejoicing over Brady's progress. Today was another day of exploration and fun for him. The only difference we notice is that he gets more tired before naptime and bedtime than usual..can you imagine how much healing is going on in that little body? Tomorrow we are going to call CP of Rochester to set up Brady's first PT appointment with them. We certainly have a lot of work to do to get him caught up, and it seems like Brady is ready to get going!