Not too much to report today. We had another day spending time with daddy. I got to go to dinner with my best bud which is always a treat:)
Since I don't have an awful lot to say tonight about Brady (who by the way continues to do great!), I want to ask for prayer for 3 specific people I met in NY. Please pray for these children and their families:
Ben: He was our amazing roomate for Brady's 3 1/2 day recovery on the pediatric unit. He is in his early 20's and has Ewing's Sarcoma. He is a Christian and he had the most genuine, caring, compassionate spirit of any young man I've ever met. He was quite sick from the chemo he was receiving, but constantly worrying about how he was bothering Brady (which he never was!). He had this cancer in his midteens, but beat it. Now he has relasped. His doctors in NC told him there was nothing they could do to fight the tumors throughout his pelvis, other than amputate his entire lower body. His father found a doctor at Sloan who could take out the massive tumor and offer him a good prognosis using chemotherapy. Please pray for Ben, a person in the prime of his life fighting this terrible disease. He has some orthapedic issues as well because of the cancer, and we are praying for complete healing for Ben. He has SO much to offer the world!
Eli: Eli is a 5 year old little boy from Iowa. I met his dad Aaron in the online world right after Brady's diagnosis and he has been a great friend to us every since. Eli has been battling Stage IV Neuroblastoma for almost two years. He and his dad spend many many weeks away from home in order to seek treatment at Sloan. Eli has endured so much in the way of treatment, chemo, radiation, surgeries...He has a contagious, enegergetic spirit. Please pray that that the treatment he is receiving will provide complete healing for Eli.
Nathaniel: Nathaniel is an 17 month old boy from California. I also met his mom Gillian in the online world as he and Brady has SO many similarities. He also has Stage III NB with spinal involvement. He had an emergency laminectomy on the day of his diagnosis because the tumor was compressing his spinal cord, just like Brady's. He and his parents are now in NYC awaiting surgery with Dr. Laquaglia tomorrow morning. We are praying for Nathaniel's surgery to be a success and that the surgery will be the final step in his treatment!
Thank you friends for praying for others fighting this fight. Our trip to NY really opened my eyes to a whole world of suffering children and families. I have not been able to stop thinking about these children and others that we met. It is obvious that this experience has changed me forever. I'm certain that we want to make a difference in the world of neuroblastoma somehow, someday. I'm praying that in time God will show us how we can help other families.