Well today will prove to be an adventure. Brady had to have an XRAY today to see if the small air pocket in his lung had cleared up (very common after chest tube). If not they can't clear us to fly. Yes we have considered driving and still are. I'm not sure how he will do strapped in a carseat for that long given where his incisions are. We'll have to see what the doctors think is best. Brady is a little grouchy today...seems to be tired and I'm sure it isn't easy coming off of the stronger pain meds. We are working very hard to find the right combination of oral meds that make his comfortable. I'll update more when we have a plan. By the way...angel flight is a no go for this short of notice.
2:30 We are officially discharged. Brady's chest x-ray was normal so he is cleared to fly. We found a flight home tonight. It will be so great to be back. We met with one of the oncologists. The plan right now is to come back for a post-surgical visit with Dr. L in two weeks and do new scans in 4 weeks. Right now there is no plans for additional treatment. The scans will help determine that. Sometimes when the primary tumor is removed, the small part that was left dies. We also received the urine HVA/VMA (normal substances that increase with neuroblastoma). Before the surgery, Brady's levels were in the 120's/140's, after surgery they were both less than 20. Not quite in normal range, but close. We're going to let Brady nap here for a while before we leave the hospital (he's out cold).
9:30pm Just wanted to let you all know we are home safe and sound. Quite an adventure today, that is for sure. Brady, our little trooper, endured it all so well. All six Williams' together again...I have so much to say thank you to God for tonight, I just hope I can stay awake long enough:)