Friday, April 10, 2009

Friday updates

Well today will prove to be an adventure. Brady had to have an XRAY today to see if the small air pocket in his lung had cleared up (very common after chest tube). If not they can't clear us to fly. Yes we have considered driving and still are. I'm not sure how he will do strapped in a carseat for that long given where his incisions are. We'll have to see what the doctors think is best. Brady is a little grouchy today...seems to be tired and I'm sure it isn't easy coming off of the stronger pain meds. We are working very hard to find the right combination of oral meds that make his comfortable. I'll update more when we have a plan. By the way...angel flight is a no go for this short of notice.

2:30 We are officially discharged. Brady's chest x-ray was normal so he is cleared to fly. We found a flight home tonight. It will be so great to be back. We met with one of the oncologists. The plan right now is to come back for a post-surgical visit with Dr. L in two weeks and do new scans in 4 weeks. Right now there is no plans for additional treatment. The scans will help determine that. Sometimes when the primary tumor is removed, the small part that was left dies. We also received the urine HVA/VMA (normal substances that increase with neuroblastoma). Before the surgery, Brady's levels were in the 120's/140's, after surgery they were both less than 20. Not quite in normal range, but close. We're going to let Brady nap here for a while before we leave the hospital (he's out cold).
Matt

9:30pm Just wanted to let you all know we are home safe and sound. Quite an adventure today, that is for sure. Brady, our little trooper, endured it all so well. All six Williams' together again...I have so much to say thank you to God for tonight, I just hope I can stay awake long enough:)

20 comments:

  1. Please pray for April Rose. The latest doctor reports show that her heartrate is getting slower, and things do not look good right now. Please help us lift her mother up in prayer. Thank you.

    www.littleoneapril.blogspot.com/

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  2. Hooray!! Great news all around! Glad you were able to find a flight and will be able to get home even sooner than you expected. It must be reassuring to see the HVA/VMA levels coming down so significantly. Safe travels home! :o)
    -Rosalie

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  3. Megan and Matt,

    I am shedding tears of happiness for you guys and for little Brady!! I know how much you wanted your entire family to be together for Easter and it looks like you will be!! What wonderful news that his x-ray came back normal!!

    May your travels be safe and pain free for Brady!!

    This is such a special time of year, full of promise and new beginnings!! As a family, we continue to pray for Brady, and for you!! May you continue to feel God's Glory!!

    Blessings!

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  4. Wonderful news!!! You will be home with your family in time for Easter!! God bless all of you!!

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  5. Yippee for getting discharged!!!!!! Now we will pray for your safe return to the rest of the family and that Brady continues to heal well. Also pray that he IMPROVES over the next few weeks and for positive scans to come. Pray for a complete healing for Brady...and that it stays that way!

    Happy Easter indeed!! Bless you and the family! My kids are going to be so excited to hear the news:)

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  6. What great news!!!! I am so glad you will get to be home as a family once again. Safe travels and Happy Easter!

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  7. What perfect timing God has. An Easter miracle. We all are praising & thanking God with you that your whole family will be together for Easter. We'll continue our prayers for traveling and comfort for Brady.

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  8. Just checking in b/f our Good Friday Services, and so glad to hear you're coming home! Since you can't squeeze him give him extra kisses and tell him he's our hero! What a little man, wish we could see him find his basket! Have a great Easter, and only worry about yourselves, it's okay to be selfish sometimes!!! love you guys

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  9. That is fabulous news!! Have a safe trip home and a happy easter!! =D

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  10. WONDERFUL NEWS! HAPPY EASTER!!!

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  11. I am so glad to hear that your whole family will be together for Easter and that Brady is doing so well! We will continue to keep you all in our prayers!

    Susan B & boys

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  12. Hi Matt and Megan,

    It is obvious that God had yet another Easter miracle up his sleeve for our dear Brady Boy!! If this ressurection Sunday doesn't have yet a fresh and renewed meaning in our hearts I don't know what else could do it!
    Loved tons!!

    Robin

    PS I have some Easter cookies for the William's family! :-)

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  13. So happy to hear your good news. I hope that you all have an enjoyable Easter together. I'll continue to pray for your family. Pam xx

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  14. WELCOME HOME!!!! What a sweet Easter it will be in your house! :)

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  15. Have a wonderful Easter weekend at home with your beautiful Family! I'm really happy for you all!

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  16. Home Sweet Home, I hope the Easter Bunny got the memo and is all ready. Great news on the plan and VMA/HVA. Praying the plan will end up being the same as ours! No plan. Happy Easter. God Bless, Love, Ellen, Scott A., and your triplet friends, Kathleen, Sean and Heather
    http://www.caringbridge.org/ma/seanhanson

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  17. Meg,
    How amazing and good is our Lord!!!!! We will continue to pray for you, Brady and your family. May the Lord continue to bless you and may you be filled in His goodness, faith and love. Happy Easter. Much love,
    Heather, Brian and Paige

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  18. Hello Williams Family: We are so happy you are home together for Easter. We will continue to pray for all of you!!

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  19. Praise God, He took care of you guys. God bless, and have a great Easter.

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