The surgery that was performed was called a laminectomy. The surgeon made an incision directly over the spine, and entered the spinal column by removing the lamina from each of the vertebrae from T2-T7. This is not a terribly uncommon surgery for adults with spine problems, but usually one or two levels are removed, not 5. Here is a diagram of the lamina. I think of lamina as the walls around the spine that keep it straight and supported as it grows.
So, with five of these "supports" missing from Brady's spine, as it grows, it is bending and curving without a structure to keep it straight. Here is a picture of a kyphotic spine. Brady's "hump" is more on the right side, the side where his surgery was performed.
That is my version of Brady's spinal issues. He is also at risk for a significant scoliosis, but so far, that curve is not as severe. Matt and I are diving into research and scouring the internet for information. It won't surprise you that we aren't just accepting the "there is nothing we can do" response. This may turn out to be true, but with a ton of prayer, lots of reading, and consulting as many other professionals as we can, we are trusting that God will lead us to an answer if there is one out there!
There is just one week to go until Brady's 1 year anniversary. I didn't realize this when I started it, but the January 21st project has given me so much encouragement, beyond what I thought I needed. Imagine how all of the amazing stories, testimonies, and pictures will help Brady stay strong and never to give up hope when he reads them some day!
Talk to the Little People of America. This is a problem common in dwarfism. They should be refer you to a doctor that can help. I am 100% sure there is something they can do.
ReplyDeleteAbout to start writing my January 21st project letter for you now. This is my FIRST day of having a childless house since school and kindy finished in early December and writing for Brady is how I am going to spend the next little while :)
ReplyDeletePrayers are continuing to come your way.
M x
What a great suggestion from kdliberty! There is a person out there somewhere who will know who you should contact.
ReplyDeleteThe pile of dirt in your front yard was impressive. No wonder the cherubs loved it. They must have had funny comments about the cigar, too. The Lord sent entertainment when it was needed.
Lots of prayers for all,
A.
HUgs!
ReplyDeleteWhile I lived in Oakfield, my parents had to do the same thing in our front yard...but it was much warmer out.
Megan, don't give up on hope! Sometimes our prayers aren't answered in our time, but in God's time. He hears our heart and I have learned it is about letting go and taking the leap of faith! Prayerful thoughts are with you!
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