I got a lot of answers today as to why things haven't been moving along with Brady's scans...
My doctor never ordered them! I struggle with whether or not I should put some things on the blog related to our dissatisfaction with our experiences, but I think if I am always honest, then perhaps our story will help someone else. I found all of this out by calling the MRI department for the 3rd day in a row. My wonderful nurse friend there and I have been playing phone tag. She finally got a hold of me and told me that they haven't been able to schedule Brady because they haven't received an order from the doctor. I emailed the doctor on July 16th, and she replied that she was putting in the order the next day. Thank goodness I saved all of the emails...
I was SO outraged by this, and so many other times that we have seemingly been forgotten, that I composed myself and called the oncology department. I told them what had happened, that I had emails documenting everything, and that this is not the first time our doctor has failed to communicate with us. I explained that I could no longer trust our doctor to do what she says she will, and that I am completely uncomfortable putting Brady's care in her hands. I then asked for a different doctor. I felt a little uneasy since I hadn't spoken to Matt about any of this, but I knew he would agree 100% (and they should be glad it wasn't him calling!!) A got a call back from a NP about 30 minutes later who wanted to know the whole story. I told her about this incident, about our doctor not remembering that she had met with us regarding Brady's post-op scans, and how no one called me back 3 weeks ago when I was concerned about his belly. She asked me to forward her the emails that I had, so I did.
An hour or so later, the secretary called me with a date of July 30th for scans, and an appointment August 5th with a new doctor. I'm sad that we are starting over with a new doctor (seems to be a trend in our lives lately). However, I will never, ever apologize for expecting Brady's doctor to communicate with us and treat him as though he matters. So, one week from today we go to Strong for MRIs of Brady spine and abdomen, as well as blood/urine tests. Then we have to wait until the next week to meet with the new doctor (who by the way we liked very much when we met him right after Brady's diagnosis). I also reiterated to the NP our requests regarding anesthesia. I'm not sure what will happen on that, I have a feeling we will be hashing it out with the anesthesiologists that day.
In other "Brady News": Brady had a GREAT day at PT today. He was a willing and energetic participant in all activities! I was very proud of him!
This Saturday at Dwyer Stadium (where the Muckdogs play) the Michael Napoleone Memorial Foundation will be holding a Youth Baseball Tournament. It actually runs from Friday-Sunday. On Saturday you can come to the stadium throughout the day and enjoy free baseball, raffles, food, and free crafts for kids! There is an awareness ceremony at 6pm on the field. I will be speaking and singing (please be praying for me!). Come out and support a great cause!!!